Some of you have been wondering about my husband's condition. Basically this is a more rare condition and not many docs in our area know how to deal with it. This pic is not of my hubbie's brain but one I just picked up from my favorite picture site. Basically Chiari Malformation is when your brain descends a bit into your spinal column. It disrupts the flow of spinal fluid and can press on the brain stem causing a number of symptoms due to the complexity of nerves and stuff back there. If you know someone out there with this or have any other info please let me know about it. We are really having to research this on our own.
If you want to read more about it you can go here.
So far this has been really discouraging because the doctors we have seen here really do not understand this condition and are just pushing my hubbie off. I really cannot stand when this happens. They make him feel like he is an inconvenience. HELLO-why get into the practice of medicine if you are not ready for the challenges and even more so if you do not even have a love for people. Lord, help them. He will deal with that for sure. I am guessing we will have to go to a real treatment center to get him the proper care. So we are praying about all of this.
Last night I got to see Stephanie from Notes from the Soul. Also, my prayer partner Tiffany is in that pic too-she has an amazing voice as well. I had to sneak out of my prayer walking meeting which was so good too. I cannot wait until I get to go on this trip to Malta. God is going to do some good stuff. So back to Stephanie, I just love her so much! She is leading our worship for our conference at our church in May. I am so excited because God made her for this. She put of picks of it on her blog. I hope to put mine up too but for now go over there and see hers. It was so neat to see her again. You Georgia gals are so blessed to have her now.
And about my modesty talk. It went really well. One of the other women teachers dressed up with really tight short shorts and a really tight low cut top that exposed her belly. It was so funny. I wanted them to see that this type of dress is not attractive. We discussed it and decided it was really not "what to wear!" It was so funny!-Thanks for being a good sport, N, because I do not think I could have done that but I sure laughed til my side hurt. Those girls are so darn funny. We discussed God's word about modesty, guys, and what is going on in their world regarding it. It was good stuff.
10 comments:
I am praying for Tony. Keep us updated. Love you girl!
Kara
Hey Friend! I'm so glad to hear your talk went well...I certainly can't say I'm surprised. ;-) Just wanted to let you know in case it could help, I remember several years ago (at least) seeing a special on tv about a woman who had what I think is this condition. Her symptoms were terrible vertigo while standing (as the brain put more pressure on the spinal cord), but if she lay down, she had relief. She was a dentist so she kept a couch in her office so that she could lie down between patients! It might have been on 60 Minutes or some similar news show, but I just remember feeling so bad for her. It would be a miracle if this little rambling helps you, but maybe it will lead you towards something as I know our awesome God has been known to work a miracle or two, Amen?! ;-)
I'm so glad your talk went well- I knew you would be a hit.
I'm so sorry you are struggling with your Dr's. That has to be incredibly frustrating.
Praying for answers.
I'm praying for you guys! I'm still in shock that my GA friend Amy's daughter has this same thing!!! I need to get you two together! :)
Your words mean so much..you are WAY to kind....
love you
steph.
Wow, I don't know how I got to this site; I think through Susan. Anyway, having worked in the medical field for 20 years, I'm aware of the patient/doctor relationship and how frustrating it can be. You're in my prayers.
Malta, huh? We lived in Sicily for six years (Malta was our neighbor!). It's absolutely gorgeous, although I'm still partial to Sicily (smile!).
Blessings!
Thanks for the medical information and link, Angela. (How did you guys discover your husband's condition?)
You certainly have a lot of GOOD things going on in your life right now. Praise God your "What not to Wear" talk was a success!
You'll be in my prayers over the weekend.
Hugs, e-Mom
Angela,
Have ya'll thought about heading south to Emory for your husband to see a specialist? I bet they would take him seriously!!
I have a dear friend, one of my bff's that is teaching a Purity Class for our middle school girls in our church. She wrote most of the curriculum herself and she has taught it several times. It is such a badly needed topic today and not just for girls.
Bless you, dear one. Have a wonderful weekend.
Leah
Someone I used to work with had surgery because of this, I will try to find out his contact information. I believe the surgery was done in Greenville, SC, although he lives here in Columbia. I will try and find out more and get back with you Angela.
Kim
I get an e-mail anytime someone blogs about chiari ~ so I found your blog and read that your husband has been diagnosed with Chiari. I was diagnosed in September of 2006 and have blog, too ~ where I have journaled about my chiari journey. I have done lots of research about chiari and related diseases. I hope you check out my blog and find it helpful and uplifting.
http://livelovelaugh-lace1013.blogspot.com/
Know that you all are not alone in this journey. There are lots of us out there suffering from the same disease ~ it's a great test of faith ~ Hugs ~ Lacie
Angela, thanks for posting an update on your hubby.
And, I'm happy to hear that your modesty talk went so well! YAY! and Glory to God!
Sanya
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